Patricia

Thank you, Gail for your input.  I take Glycopyrrolate and  have both machines. I have an appointment with my ALS team on September 1.  I will most definitely ask for anything that might give me some relief.

Thanks, Debbie. I have and use a cough assist device and suction machine.

Thank you Bill! I will look into seeing if I can possibly get a prescription for ipratropium bromide.

Thank you!

If God allows me to, I will celebrate my 64th birthday on August 1st and my 43rd wedding anniversary on August 25th.

My neurologist prescribed Scopolamine patches. They were actually working but after using only 2 patches, my husband insisted that I no longer use them. They caused me to have psychotic behavior. I rambled all night long, thought that people were in my home that were not, and my personality was totally changed. My husband had to watch me all night…[Read more]

I am grateful that I have not lost the ability to communicate, walk or take care of my personal needs. I’m also thankful that I am able to continue driving at this time.  I thank God daily for things being as well as they are!

John, thanks for sharing this information. It gives me a little hope knowing that some ALS patients can continue to be mobile for 16 years. One of the biggest fears about this disease is the fear of the unknown!

I was seeing a neurologist who could not diagnose my case and was referred to a large medical center in Texas.  It took three months to get an appointment with the neurologist there and it was a video visit. About three months later, I went for an EMG followed by another video visit.

The doctor said, “You have ALS.  You need to get a port put i…[Read more]