@pakeener
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Patricia replied to the topic Are you celebrating anything special this summer? in the forum Living With ALS 1 week, 1 day ago
If God allows me to, I will celebrate my 64th birthday on August 1st and my 43rd wedding anniversary on August 25th.
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Patricia replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 2 weeks, 5 days ago
My neurologist prescribed Scopolamine patches. They were actually working but after using only 2 patches, my husband insisted that I no longer use them. They caused me to have psychotic behavior. I rambled all night long, thought that people were in my home that were not, and my personality was totally changed. My husband had to watch me all night…[Read more]
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Tom Hehir and
Patricia are now friends 1 year ago
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Ginger and
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Patricia started the topic Burning Sensations in the forum Living With ALS 1 year ago
Does anyone else experience intense burning sensations? I have only recently started experiencing them. I contacted my neurologist and was prescribed Gabapentin. After reading all of the possible side effects, I decided not to take it. I’m taking extra strength Tylenol rapid release capsules instead, but it’s really not effective.
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Patricia replied to the topic Member Check In in the forum Living With ALS 1 year ago
I am grateful that I have not lost the ability to communicate, walk or take care of my personal needs. I’m also thankful that I am able to continue driving at this time. I thank God daily for things being as well as they are!
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Patricia replied to the topic What vital Question to ask Neuro on Friday?? in the forum Diagnosis Information and General Questions 1 year, 4 months ago
John, thanks for sharing this information. It gives me a little hope knowing that some ALS patients can continue to be mobile for 16 years. One of the biggest fears about this disease is the fear of the unknown!
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Dagmar Munn and
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Amanda and
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Patricia's profile was updated 1 year, 9 months ago
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Patricia replied to the topic Questions for your medical team in the forum Diagnosis Information and General Questions 1 year, 9 months ago
I was seeing a neurologist who could not diagnose my case and was referred to a large medical center in Texas. It took three months to get an appointment with the neurologist there and it was a video visit. About three months later, I went for an EMG followed by another video visit.
The doctor said, “You have ALS. You need to get a port put i…[Read more]
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Patricia became a registered member 1 year, 9 months ago
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Hello Patricia,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Patricia, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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