ALS News Today Forums | Patricia | Activity https://alsnewstoday.com/forums/members/pakeener/activity/ Activity feed for Patricia. Mon, 13 Apr 2026 00:27:43 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 8f4f2e5fe1e1b60c2d675c07d7817296 Patricia replied to the discussion EXCESS MUCUS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/excess-mucus/#post-22518 Wed, 17 Aug 2022 06:49:43 -0500 Reply to EXCESS MUCUS

Thank you, Gail for your input.  I take Glycopyrrolate and  have both machines. I have an appointment with my ALS team on September 1.  I will most definitely ask for anything that might give me some relief.

]]> c0a9ffbfa48e7cadb771894db688f04a Patricia replied to the discussion EXCESS MUCUS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/excess-mucus/#post-22517 Wed, 17 Aug 2022 06:43:08 -0500 Reply to EXCESS MUCUS

Thanks, Debbie. I have and use a cough assist device and suction machine.

]]> c002f7b50ec738d454e49d1bb1f510c8 Patricia replied to the discussion EXCESS MUCUS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/excess-mucus/#post-22516 Wed, 17 Aug 2022 06:39:52 -0500 Reply to EXCESS MUCUS

Thank you Bill! I will look into seeing if I can possibly get a prescription for ipratropium bromide.

]]> be5bc5566a2767ed1f53522e7c1e31fd Patricia replied to the discussion EXCESS MUCUS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/excess-mucus/#post-22515 Wed, 17 Aug 2022 06:31:05 -0500 Reply to EXCESS MUCUS

Thank you!

]]> f89311bad1bc71518e64ae432829081a Patricia started the discussion EXCESS MUCUS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/excess-mucus/ Thu, 21 Jul 2022 23:16:04 -0500 EXCESS MUCUS

I AM EXPERIENCING MUCUS IN MY MOUTH 24 HOURS A DAY. IT APPEARS TO BE COMING FROM MY NOSE.  IT’S THIN, BUT IT NEVER STOPS. IT ACTUALLY COATS MY NASAL PASSAGES MAKING IT DIFFICULT TO BREATHE AT TIMES. I’VE BEEN TO AN ENT DOCTOR. OF COURSE, HE DIDN’T SEE ANYTHING. MY TEETH ARE ALSO CONSTANTLY COVERED, FORMING A GEL ON A PERMANENT RETAINER I… Read more

]]> 2861a1199e0d428774bc9c5f4ad452ce Patricia replied to the discussion Are you celebrating anything special this summer? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/are-you-celebrating-anything-special-this-summer/#post-22237 Tue, 28 Jun 2022 20:42:29 -0500 Reply to Are you celebrating anything special this summer?

If God allows me to, I will celebrate my 64th birthday on August 1st and my 43rd wedding anniversary on August 25th.

]]> 9710fa3091c28fc910b75fcd6693a888 Patricia replied to the discussion A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/a-cure-and-hope-for-als-also-wanting-to-know-about-treating-excess-saliva/#post-22169 Sat, 18 Jun 2022 01:09:25 -0500 Reply to A cure and hope for ALS (also wanting to know about treating excess saliva)

My neurologist prescribed Scopolamine patches. They were actually working but after using only 2 patches, my husband insisted that I no longer use them. They caused me to have psychotic behavior. I rambled all night long, thought that people were in my home that were not, and my personality was totally changed. My husband had to watch me all… Read more

]]> 7900412732e1082135e4d79558457640 Patricia started the discussion Burning Sensations in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/burning-sensations/ Thu, 01 Jul 2021 21:26:38 -0500 Burning Sensations

Does anyone else experience intense burning sensations? I have only recently started experiencing them. I contacted my neurologist and was prescribed Gabapentin. After reading all of the possible side effects, I decided not to take it. I’m taking extra strength Tylenol rapid release capsules instead, but it’s really not effective.

]]> 0f8a55dd9cccbe95192cd9a615f99f58 Patricia replied to the discussion Member Check In in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/member-check-in/#post-19440 Wed, 09 Jun 2021 07:36:47 -0500 Reply to Member Check In

I am grateful that I have not lost the ability to communicate, walk or take care of my personal needs. I’m also thankful that I am able to continue driving at this time.  I thank God daily for things being as well as they are!

]]> d6f6c0d9b454d6b46a5c6ad758abace6 Patricia replied to the discussion What vital Question to ask Neuro on Friday?? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/what-vital-question-to-ask-neuro-on-friday/#post-17755 Mon, 15 Feb 2021 20:50:39 -0600 Reply to What vital Question to ask Neuro on Friday??

John, thanks for sharing this information. It gives me a little hope knowing that some ALS patients can continue to be mobile for 16 years. One of the biggest fears about this disease is the fear of the unknown!

]]> 73dbe4e9ba6747b29f8f8cc9fe082f7a Patricia updated their profile https://alsnewstoday.com/forums/activity/p/8175/ Thu, 08 Oct 2020 21:42:12 -0500 0 f626a7e88836d968a2db680c2687555c Patricia replied to the discussion Questions for your medical team in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/questions-for-your-medical-team/#post-16470 Wed, 30 Sep 2020 07:37:56 -0500 Reply to Questions for your medical team

I was seeing a neurologist who could not diagnose my case and was referred to a large medical center in Texas.  It took three months to get an appointment with the neurologist there and it was a video visit. About three months later, I went for an EMG followed by another video visit.

The doctor said, “You have ALS.  You need to get a port put… Read more

]]> e30fc82fc7f76dad81832c6c31fe5e7a Patricia became a registered member https://alsnewstoday.com/forums/activity/p/8045/ Tue, 29 Sep 2020 21:53:49 -0500 2