Rudy Palenik
Forum Replies Created
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In May 2019 my neck muscles got weak and I am wearing a brace around my neck. I have experienced sharp pain in my neck. I take a pain pill before I go to bed to sleep for five hours. I have an ALS clinic next Friday and I will ask the Doctor what to do. Have any of you experienced that? What did you do? PT?
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I was diagnosed with ALS on March 20,2018. One month later I was experiencing muscle fasciulations. I immediately googled to search for sterching excercises. I stretch daily for about 15 minutes upper and lower body and also balance routine. It worked for me and I am taking 1500 mg of terumic daily which helps cut down inflammation.
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Hi Amanda, I had a test for C9 mutant gene about two months ago by NEALS. It came out negative. If it was positive there would be a 50/50 chance that my daughters and my son would get it.
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First of all NurOwn is not a drug. It’s a stem cell procedure. Stems cells are pulled from your bone marrow frozen and the stem cells are selected as to create the most effective NTFs and then-multiplied and then injected into your spinal fluid. Second the age requirement of Brainstorm phase NurOwn was created to get the best results out of the clinical trial as well as fast progressors.