@papafox
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Robert Foxwell and
Amanda are now friends 1 year, 7 months ago -
Robert Foxwell and
Dagmar Munn are now friends 1 year, 7 months ago -
Robert Foxwell started the topic Healey ALS Platform Trials in the forum Research Topics 1 year, 10 months ago
Has anyone been or plan on being screened for the Healey ALS Platform Trial?
I submitted my name with my ALS Clinic in Detroit, in the hope of being a favorable candidate for the trial.
I found this trial at the I AM ALS website, where they have a nice tool for searching out clinical trials. Through this same website I found the group Unite…[Read more]
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Robert Foxwell replied to the topic Rilozole experience? in the forum A Forum for ALS Caregivers 1 year, 11 months ago
Carl, I also have a loss of taste but never attributed it to the Riluzole. I’ve been taking it since my diagnosis 2-1/2 years ago, but only noticed the loss of taste this past spring. I thought it could have been a covid symptom, but it was the only symptom I had.
I’ll bring it up with my neurologist during my upcoming visit.
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Robert Foxwell posted a new activity comment 1 year, 11 months ago
Thank you for the warm welcome Dagmar.
I’m looking forward to going through the forums. -
Robert Foxwell replied to the topic Are you getting a flu shot this year? in the forum Living With ALS 1 year, 11 months ago
I have never received a flu shot, and have never had the flu and I rarely get the common cold. I have already declined all three recently, but I’m reconsidering that decision. I have an upcoming visit at the ALS Clinic and will discuss all 3 with my neurologist.
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Robert Foxwell became a registered member 1 year, 11 months ago
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Hello Robert,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Thank you for the warm welcome Dagmar.
I’m looking forward to going through the forums.
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Hello Robert, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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Robert Foxwell's profile was updated 1 year, 11 months ago
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Robert Foxwell changed their profile picture 1 year, 11 months ago
