Pauline Kaza

Is stem cell available in the U.S?

Thank you for your detailed information on what equipment you are using

I’m not ready yet to be defined by any words other than my name.. Many people have heavy crosses to bear. Why do we need adjectives to describe ourselves? But, I do agree that if you have lost a loved one and you are able to cope, you are a true survivor.

I’m not ready yet to be defined by any words other than my name.. Many people have heavy crosses to bear. Why do we need adjectives to describe ourselves?

A Survivor

I also have RA. and Fibromyalgia.  It is difficult to discern which disease is causing the pain.  Troubling to me some days.  Stretching and heat help

Sorry you have had such a scary and unusual experience.  Maybe your mouth,,jaw and tongue muscles have become week.  Have you had a speech therapist?  My therapist helps me with swallowing, throat, Vocal and tongue exercises. I have maintained for 5 yrs. I wish you well.I believe nothing tried nothing gained

Yes I also have the same issues. I also have Sojourns syndrome which causes dry mouth and cavities.  I use Biotene products for dry mouth.  It seems to help the cheek biting, creates some comfort. Blessings, Pauline kaza

shown interest in a palatel lift prothesis made by maxiofacial dentist.can we start conversation on surgery for our palates that control our food and drink. I have spoken to the top plastic surgeon Dr. Papay at Cleveland Clinic and the Durham University ALS dept. These Drs do cleft palate surgery on children and babies. Because they have never…[Read more]

Find a SLP who is familiar with our disease.  It may take a few tries, but is worth it.  Eventually you’ll be able to do the exercises on your own.  Or just go for it on your own.  On your own, you may find out how independent you can be.  Pauline

<p style=”text-align: left;”>My dysarthria  began early on about  four years before diagnosis.   At that time  I didn’t know what was going on.  So I began searching on google for  causes of compromised speech.  A lot of SLP’S came up.  So I chose a couple and followed on utube with them every day. One was Donna  Durbin  an accent coach .
The…

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