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  • Perfecto Cobian

    Member
    May 18, 2022 at 8:11 am in reply to: Long Journey

    I was diagnosed with ALS after everything else was ruled out on December 18, 2019.  I have since then read thousands of pages about ALS, got into an ALS clinic, joined an ALS support group, became an advocate for ALS.  Each journey is different due to how ALS manifests in each one of us.

    The best place for information is alsfoundation.org.  There you can find you local area ALS Foundation contact information; clinical trials info and much more.

    Make sure that you seek resources for patients as well as for your care diver.  Feel free to contact me if you have questions related to ALS or just need to vent.  YOU ARE NOT ALONE.

     

  • I bought thin rubber insoles to use with my AFO. You can also try removing the inner sole of the shoe and use it overt the AFO.  Also NB has mesh shoes that stretch and are very comfortable when using the AFO.