Hi Folks, I received my 5th booster (Moderna) a few weeks ago.  I’ve always had breathing issues my entire life and am deathly afraid of getting Covid, so I’ll take every precaution against it!  This latest booster was for the omicron variants.  So far no adverse reactions other than a slightly sore arm the day after.

Dagmar, thanks for mentioning toxins!  My particular toxin was CO2.  When my wife took me to the doctor, which I have no memory of, the doctor told her to take me to the hospital.  It was there after testing my blood they found my CO2 level at close to 200!  I now rely on a BiPAP machine to keep the CO2 levels down.  I wear the BiPAP 20+… Read more

Thanks Dagmar I’ll try it!!

Good Luck Eric!  I’m in the same position, I walked into the hospital at the end of march and was taken home 2 weeks later in a private ambulance and could not walk.  Luckily with some help from a physical therapist I can now walk (actually, hobble around) but I tire easily and use a cane because I’m afraid of falling.  I was placed on Maine’s… Read more

I was diagnosed at 63, but what I thought were signs of old age was probably undiagnosed ALS.  I spent 14 days in the hospital while being diagnosed and they gave me about 1 month to live; needles to say my wife was devastated.  I look at each new day with hope and a new beginning.  I was diagnosed in March 2022!  when it comes to ALS most… Read more

Though recently diagnosed with ALS, as I think back I’ve probably exhibited signs of ALS for at least 3-4 years.  Now, I feel tired after walking with a cane after going a block or two.  I recover after sitting down for 15 to 20 minutes, but I can’t sit on a low seat, because then I can’t get up by myself.  I keep a positive attitude though and… Read more

I wear what makes me comfortable!

Swallow your pride and be glad you can still walk!

Amanda, please don’t let someone who may have been having a bad day spoil your good nature and manners.  If you held a door for me I would profusely thank you for your kindness!

Hi Kris, check if your state has a hospice or home care service that you can use.  I was placed on the hospice service in my state and they provided a Hoyer lift for free, but I have never used it.  I’m now in Home Care, because the Hospice folks wanted me to croak in 6 months or less!

In addition to what everyone else has said, this really needs to be emphasized to allergists.  For years I was seeing an allergist and taking all sorts of medicine for it with little to no result.  After being diagnosed with ALS, I let my allergist know and he said thinking out loud, “no wonder your lungs sounded clear”

I’m sorry to hear that some of you had COVID.  Fortunately my wife and I have steered clear of this horrible pandemic.  Everywhere we go we wear a mask even to the dismay of others, but with that said we don’t go out much and when we do we take all precautions.  We especially avoid crowds and avoid social contact with those we don’t know. We are… Read more