Viewing 7 reply threads
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    • #22621
      Dagmar Munn
      Keymaster

      Do you like to dress up (wear nice clothes) for your medical-related appointments or procedures? Do the clothes you wear give you added confidence when seeing the doctor? Do you feel that your doctor and ALS team judge your emotional state by the clothes you wear to your appointment?

    • #22653
      Dagmar Munn
      Keymaster

      Even though I know my doctor and the clinic team won’t judge me for wearing laid-back, casual clothes, I can’t let go of wanting to dress up just a little.

      I’ve come to rely on a wellness strategy called “showing up.” It involves a combination of taking care of my appearance no matter how deep a mental funk I happen to be in, and not wanting to be seen as someone who’s relinquished their identity to ALS. I want to be perceived as a person first and a patient second.

      Do you feel this way too?

      I wrote more about my clothing choices for medical appointments in this column: “Why What I Wear to My ALS Appointments Helps Me Feel Better” https://alsnewstoday.com/columns/what-i-wear-als-appointments-helps-feel-better-patient-clothing/

    • #22655
      Jerry Fabrizio
      Participant

      I wear clothes that will help them do their jobs.  Also Christian tee shirts

    • #22656
      Maggie Broeren
      Participant

      Hi All,

      I like to dress up a little to show up like I want to be remembered  I never think I am being judged by anyone from the ALS clinic

      Since I wear my mask-respirator 100% of the time I do get funny looks sometimes. If it is a stare from a young child I often ask the parent if I can talk to their child. I simply explain that it is hard for me to breathe and that there is air coming through my mask. It feels like an educational opportunity to teach in the moment. It may also reduce any fears which the child may have

      Maggie B

       

       

    • #22659
      Mary Kate Smith
      Participant

      I like to dress nicely also. Since I don’t go out alot this is a place where I can get dress up. Not like a night on the town but nice.

    • #22660
      Sandra Mikush
      Participant

      Like others, I like to look a bit nicer for clinic appointments. Of course, I could never out-dress Dr. Bedlack! (I tried to attach a photo but can’t figure out how to do it.)

    • #22679
      Pete Caluori
      Participant

      I wear what makes me comfortable!

    • #22699
      Lisa Bonahoom
      Participant

      I wear an irreverent ALS T-shirt. The clinic and other patients appreciate and love it. If I can bring a smile to the faces of that group my job is done. No one is offended.

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