-
Lisa Bonahoom replied to the topic Looking for PALS for ALS News Today News Story in the forum Research Topics 7 months, 2 weeks ago
Happy to talk with you Hawken, if I can be of help. Lisa
-
Lisa Bonahoom replied to the topic Do you consider yourself a “hero” for living with ALS? How about a “survivor?” in the forum Living With ALS 8 months, 1 week ago
I prefer Warrior, because I never stop fighting!
-
Lisa Bonahoom replied to the topic Dressing up for hospitals or appointments in the forum Diagnosis Information and General Questions 8 months, 3 weeks ago
I wear an irreverent ALS T-shirt. The clinic and other patients appreciate and love it. If I can bring a smile to the faces of that group my job is done. No one is offended.
-
Erin minton and
Lisa Bonahoom are now friends 10 months, 3 weeks ago
-
Lisa Bonahoom replied to the topic Passing away and respiratory in the forum Diagnosis Information and General Questions 10 months, 3 weeks ago
Sadly, I think most of us pass due to respiratory issues. I wish you only the best as you care for your husband. I hope you have support. Lisa
-
Shannon Halstead and
Lisa Bonahoom are now friends 10 months, 3 weeks ago
-
Lisa Bonahoom replied to the topic Are you celebrating anything special this summer? in the forum Living With ALS 11 months, 2 weeks ago
I am happy to share that my daughter is getting married in July. It’s been a joy preparing for the wedding. I will share pictures when I can! Lisa
-
Lisa Bonahoom replied to the topic Genetics, How Does this Knowledge Change Things for You? in the forum Research Topics 1 year ago
I was in the Biogen ASO trial for C9 familial ALS. I did really well on it but was an anomaly. Not enough participants improved. They canceled the trial almost two months ago.
I am hoping for Centaur now. Hanging in there!! -
Lisa Bonahoom replied to the topic I wrote a song for ALS Awareness Month in the forum ALS Awareness Month 1 year ago
Thank you for this music! You did nail it!
-
Lisa Bonahoom replied to the topic Genetics, How Does this Knowledge Change Things for You? in the forum Research Topics 1 year ago
My family has the C9orf72 mutation. I had already been diagnosed with ALS when I was asked to test for the gene. The knowledge saved my sister from unnecessary carpal tunnel surgery. I told her to have her doctor refer her to a neurologist. They found ALS. The testing made me eligible for an important clinical trial. I have three more siblings w…[Read more]
-
Lisa Bonahoom replied to the topic Did You Have to Change Careers, or Even Retire, After Being Diagnosed with ALS in the forum Living With ALS 1 year ago
I was teaching full time, choreographing and directing shows, dancing and singing professionally, acting, designing for the opera. ALS first affected my breath, so I had to retire from everything but designing for West Bay Opera. I danced in the studio for almost 5 years after diagnosis. My ALS has progressed to my limbs, so I had to retire from…[Read more]
-
Susan and
Lisa Bonahoom are now friends 1 year, 1 month ago
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 1 month ago
It’s a wrap! We filmed yesterday and it was an amazing experience. The director and film crew were so thoughtful. It was filmed in my sister’s house in San Francisco. We worked around the sounds of the city! It was strange to be in my sister’s wheelchair. It fit me . The makeup artist did her best to make me look sick, as my character was much…[Read more]
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 1 month ago
I will be using my late sister Carol’s wheelchair. It will be a tribute to her. ALS took her last year.
lisa
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 1 month ago
The shoot was moved up one day. We are now shooting on Tuesday! I will share the experience when I can! Lisa
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 1 month ago
I am looking forward to filming in two weeks! I am sending my son to pick up my late sister’s wheelchairs to use for the shoot. We will be filming in San Francisco My sister’s home and table was chosen by the production company. Thank goodness for family! Lisa
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 2 months ago
The film is still in production and I don’t know it’s release date. I will share when I do. Lisa
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 2 months ago
Hi friends! Just an update. I am filming April 20th. So excited to represent! I will keep you in the loop. Lisa
-
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 3 months ago
Dagmar and friends, I got the part! So excited!! I did the callback today.
Lisa -
Lisa Bonahoom replied to the topic ALS in the Movies …and YOU could be a "star" in the forum ALS In The Media 1 year, 3 months ago
Hi Dagmar! I auditioned yesterday and it was a marvelous experience! I was an actress before ALS and I thought it was gone forever. I so enjoyed working with them. I will let you know what comes of it. Thank you for the connection. Lisa
- Load More