San Mateo, CA
- Short Bio
Living with ALS since 2017, I had to give up performing, but I am still a designer for the opera. My ALS is genetic, a gift of a mutating C9orf72. I have Bulbar Onset, and still dance, tap and Jazz. I will until I can’t. I have faith in God and a huge, wonderful family.
- How did you hear about us?
- How long have you or the person that you are caring for had ALS?
Since 2017. Almost two years.