• Peter Powell became a registered member 2 years, 5 months ago

    • Hello Peter,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even suggestions, just let Amanda (my co-moderator) or me know, and we will do our best to help you.

      Again, thank you for joining our forum – – We look forward to your comments and I look forward to chatting with you! Dagmar

    • Hello Peter, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us know. We want to help in anyway we can.
      The ALS forum members are a mixed group of people who are all connected to ALS in some manner. A few like myself, have a hereditary predisposition (genetic mutation) to ALS, some volunteer for clinical trials, some are pALS or caregivers, and still others are involved in medical practice or research. The members are willing to share their experiences and information.
      You are welcomed to provide feedback or suggestions for the forum. We strive to cultivate a supportive environment for our members, and we value providing up to date and relevant information.
      Please let us know if you need any information or assistance.
      Amanda

      • Thanks Amanda/Dagmar Much appreciated.

        3 days since diagnosis so the acceptance and learning has a long way to go.

        My wife is from the US and is having a tough time. We had planned to end up back over there at some stage – I loved the 3 months up in New Hampshire.

        There seems to be a lot happening over your way, and they have asked me to participate in one of (I believe) three major trials around the world.

        Will log on and start the learning journey.

        Thankyou for your support.

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