Forum Replies Created

  • RZ

    Member
    November 15, 2023 at 9:37 am in reply to: Why is there almost no research on neurotoxins as a possible cause?

    Hmm, that’s interesting. I appreciate you looking that up. I will definitely check it out. Thanks so much for your diligence Doug! Be blessed!

  • RZ

    Member
    November 14, 2023 at 8:07 pm in reply to: Why is there almost no research on neurotoxins as a possible cause?

    Thank you for providing the website Doug. I in no way endorse the L-Serine. I just thought the blog touched on some interesting correlations.

    I myself am a veteran. I did not deploy to the gulf but I am a Gulf War Era Veteran. I did however deploy to Bosnia and we were stationed next to a thermal power plan t which primary fuel was coal (definitely not up to EPAt standards). We actually always joked we were all going to get black lung disease from all the black smoke we inhaled. Who knows if there is any correlation to my ALS diagnosis.


    Anyway, I thank you again for this thread. Definitely food for thought!

  • RZ

    Member
    November 14, 2023 at 4:38 pm in reply to: Why is there almost no research on neurotoxins as a possible cause?

    This is a great topic. Thank you for posting! I have always wondered about this too. I have always been an “out of the box thinker” as well. To me, it seems like they should look more closely to the clusters where ALS is more prevalent (such as among military personnel) I question and have even found articles about flavor enhancers like monosodium glutamate(msg) possibly linked to ALS.

    I also came across this article linked to Cyanobacteria that I found interesting. https://www.iherb.com/blog/l-serine-a-radical-new-approach-to-als-parkinsons-and-alzheimers/811

  • RZ

    Member
    April 24, 2023 at 4:00 pm in reply to: What aspect of ALS has surprised you the most?

    What surprises me the most about ALS is how the symptoms range from one person to the next. When you first receive the diagnosis you’re told the grave prognosis that most people die within 5 years but, the reality is that there are many people living with this condition and have learned how to navigate the struggles.

    I have also found that ALS does not exist in a vacuum and many people struggle with comorbid illnesses, but there is very little information on this or how to cope with symptoms of ALS that may exacerbate other existing conditions or issues that may come about post diagnosis.  This in itself becomes a personal journey of discovery to see what works and what doesn’t.  I have found that moderation is key.  I try not to push myself too hard but I still push myself to do what I am able from one day to the next. I also implement routines in my life that accommodate for the level of energy I have. I make sure to take care of my responsibilities as they come.

    When it comes to pain, I can totally relate to muscle cramps all over my body; the one thing I find that helps is diet tonic water with quinine. I dilute this in my morning orange juice and I will drink more if the cramps are more prevalent. This is the best thing I have found to help alleviate excruciating muscle cramps.

  • RZ

    Member
    May 12, 2023 at 9:14 am in reply to: ALS Community Spotlight: “Does ALS hurt?”

    Hi Alan,

    Try tonic water with quinine, it seems to help alleviate the pain from muscle cramps.