ALS News Today Forums Forums Boosting Our Voices ALS Awareness Month ALS Community Spotlight: “Does ALS hurt?”

  • Alan Larrivee

    May 12, 2023 at 8:14 am

    I was diagnosed officially August 2022. (Unofficially in June on my birthday!!). Fist symptoms were slurred speech. Followed by cramping in my legs. That hurt. Gabbapenteen was prescribed but I didn’t like the side effects. I manage now by carful stretching and avoiding certain positions. I also take a drug to relax my prostate. I have no proof but it seems to reduce some muscle cramps.

    So that pain is manageable by a little.

    I do feel my speech is painful. It makes me very sad when I have to speak with someone that doesn’t know me. The looks  I get when I speak… for this I got a card from ALS Organization that I hand to people that explains the the slurred speech asks that I am given time to answer. I do recommend this.

    thank you for your time


    • RZ

      May 12, 2023 at 9:14 am

      Hi Alan,

      Try tonic water with quinine, it seems to help alleviate the pain from muscle cramps.

  • Alan Larrivee

    May 13, 2023 at 11:54 am

    Thanks RZ. I’ll try it. The real problem is that I don’t like gin…,

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