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Write a short answer to “Why does rare disease awareness matter to you” and join our Rare Disease Day initiative
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in: ALS Awareness and Advocacy
- 2
- 3
- 10 hours, 23 minutes ago
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Record a short video of yourself and join our Rare Disease Awareness initiative
Started by:
in: ALS Awareness and Advocacy
- 1
- 2
- 2 days, 16 hours ago
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When did you first hear those dreadful three letters…A….L….S ?
Started by:
in: ALS Awareness and Advocacy
- 8
- 11
- 1 month, 1 week ago
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Getting over the Tofferson Fear
Started by:
in: Research Topics
- 1
- 2
- 2 months ago
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Here I Go Again
Started by:
in: Research Topics
- 8
- 9
- 2 months, 1 week ago
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“How Do You Navigate Difficult Topics Like Mortality?”
Started by:
in: Living With ALS
- 8
- 14
- 3 months, 2 weeks ago
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Sam Shepard Book
Started by:
in: ALS In The Media
- 5
- 6
- 6 months, 1 week ago
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ALS Awareness Month…We Need You to get involved.
Started by:
in: ALS Awareness and Advocacy
- 1
- 1
- 9 months ago
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What are you Doing for ALS Awareness Month May 2022?
Started by:
in: ALS Awareness Month
- 1
- 1
- 9 months, 2 weeks ago
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If I could transform healthcare organizations. I’d change…
Started by:
in: Living With ALS
- 2
- 3
- 10 months ago
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How to be a supportive friend to a pALS or a caregiver
Started by:
in: ALS and Relationships
- 1
- 1
- 10 months ago
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Is Amazon’s “Solos” a good example that ALS recognition Is growing in Hollywood?
Started by:
in: ALS In The Media
- 4
- 6
- 10 months, 1 week ago
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What does Advocacy and Awareness mean to you?
Started by:
in: ALS Awareness and Advocacy
- 2
- 3
- 11 months, 1 week ago
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Why is ALS so difficult to diagnosis?
Started by:
in: Diagnosis Information and General Questions
- 12
- 20
- 11 months, 1 week ago
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ALS Community Invited to Help Set Research Priorities in US
Started by:
in: Research Topics
- 1
- 2
- 1 year ago
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Write a short answer to “Why does rare disease awareness matter to you” and join our Rare Disease Day initiative
