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Volunteering for ALS research
Are you volunteering for ALS research?
Tell us about the research (if you can) and what you have learned.
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3 Replies
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Not all ALS research involves testing new medications and clinical trials. I’ve found several unique and not often mentioned research projects that I participate in. These involve using my voice – – or what little is left of it!
1. EverythingALS.org has an ongoing project where I provide voice recordings (pronouncing words and reading short passages) all done online. Check it out here: https://www.everythingals.org/speechproject
2. https://www.als.net/arc/ ALS Therapy Development Institute – – online monthly questionnaire and voice recording via phone.
3. Team Gleason Speech Accessibility Project – – this one uses my voice recordings to help teach AI devices to understand my ALS-voice better. [email protected]
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I am part of a user forum for one of the BC
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C-9 positive been to COLUMBIA 3 times last time they put me on glucose monitor and was checking for insulin resistances they want to know why I am ok
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