[Shawn Shevalier]

Paula,

I make this response, not so much for you, but for someone looking for guidance and more than one opinion…

I had ALS symptoms and a diagnosis well before receiving the Covid vaccines. I did not have any side effects and my ALS decline was normal for ALS. I have yet to contract Covid.
The scientific method has to allow for the possibility that the vaccine adversely affected your pALS progression, but it must allow for it being coincidence.
I, myself, will continue getting the vaccine because -at this point – I’m more afraid of pneumonia.

Good luck, Shevy

[Shawn Shevalier]

Paula,

Were you Covid Vax skeptical beforehand?

[Shawn Shevalier]

I’m presently in the Cromolyn trial… no noticeable improvement, but no side effects.
<p class=”xmsonormal”>I have been offered inclusion in the Apellis (APL2-ALS-206) study: https://clinicaltrials.gov/ct2/show/NCT04579666</p>
<p class=”xmsonormal”>I received my genome sequence and there are no defects, so I have guarded optimism for this C3 Inhibitor study.
Does anyone have any information on the drug Pegcetacoplan?</p>
<p class=”xmsonormal”></p>

[Shawn Shevalier]

Hi Henry!

Are you the same Henry who wrote this?…

“So —I have what I have – is it Covid vaccine related?—-nobody can tell me it’s a coincidence; not even the docs at OSU and the Cleveland Clinic. The Covid vaccine is responsible for triggering these symptoms.

Henry”

If no one, including doctors, can’t tell you anything contrary from what you’ve decided from anecdotal evidence, you sir are a bad influence. Criticism sustained.
My name is not Steve.

[Shawn Shevalier]

As many of you are aware, Covid has become highly political.
I suspect people like Paula and Henry are on the Dunning-Kruger side of those politics.

Paula stated that “we” won’t be getting any further vaccines and Henry said that”nobody can tell me it’s a coincidence”. It sounds like these people have convinced themselves regardless of anything the science produces. That’s not to say that the science may not eventually validate their conclusions, but they likely won’t accept it if it doesn’t.

Why does it matter? If Henry and Paula’s husband get Covid and die because their lungs are weakened by ALS, that’s on them.
But if their unscientific certitude influences someone who otherwise would have gotten the shot at the advice of their Healthcare professional, that’s irresponsible.

As someone who has had ALS a few years, I can tell you that your progression rates are not unprecedented. I got ALS before Covid, I’ve had all of the shots, and my progression matches the standard rate over time.

For those of you following this thread for input on your decision making, I will leave you with this: rarely is anecdotal evidence better than actual evidence derived from the scientific method.

Shevy

[Shawn Shevalier]

Try adding guacamole to your diet, it’s high in good fats.

I’ve always had good cholesterol numbers, but recently the number spiked (all of it HDL).
The Doc said to keep at it.