Hello Steven, Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even suggestions, just let Amanda (my co-moderator) or me know, and we will do our best to help you. Again, thank you for joining our forum – – I look forward to chatting with you!
Hi Dagmar,
Managed to log in. Only email works, not username. Anyway, thank you for your welcome. I have haemochromatosis, and I know that excess iron in the central nervous system is an issue for PALS. Wondered if there was any discussion on this?
Thanks, Steve
Hi Steven,
I’m sorry you encountered issues logging in. Do let me know if you continue to have problems… we will work to help you 🙂 I am not familiar with haemochromatosis (excess iron) however, it would be interesting discussion if you post a new topic asking if any other members have a similar condition.
Hello Steven, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us know. We want to help in anyway we can.
The ALS forum members are a mixed group of people who are all connected to ALS in some manner. A few like myself, have a hereditary predisposition (genetic mutation) to ALS, some volunteer for clinical trials, some are pALS or caregivers, and still others are involved in medical practice or research. The members are willing to share their experiences and information.
You are welcomed to provide feedback or suggestions for the forum. We strive to cultivate a supportive environment for our members, and we value providing up to date and relevant information.
Please let us know if you need any information or assistance.
Amanda
Hello Steven, Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even suggestions, just let Amanda (my co-moderator) or me know, and we will do our best to help you. Again, thank you for joining our forum – – I look forward to chatting with you!
Hi Dagmar,
Managed to log in. Only email works, not username. Anyway, thank you for your welcome. I have haemochromatosis, and I know that excess iron in the central nervous system is an issue for PALS. Wondered if there was any discussion on this?
Thanks, Steve
Hi Steven,
I’m sorry you encountered issues logging in. Do let me know if you continue to have problems… we will work to help you 🙂 I am not familiar with haemochromatosis (excess iron) however, it would be interesting discussion if you post a new topic asking if any other members have a similar condition.
Hello Steven, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us know. We want to help in anyway we can.
The ALS forum members are a mixed group of people who are all connected to ALS in some manner. A few like myself, have a hereditary predisposition (genetic mutation) to ALS, some volunteer for clinical trials, some are pALS or caregivers, and still others are involved in medical practice or research. The members are willing to share their experiences and information.
You are welcomed to provide feedback or suggestions for the forum. We strive to cultivate a supportive environment for our members, and we value providing up to date and relevant information.
Please let us know if you need any information or assistance.
Amanda