Forum Replies Created

  • vica

    Member
    February 16, 2025 at 8:43 am in reply to: What is on your medical calendar for February?

    We have an appointment this Friday February 21st. It’s our 2nd since my husband’s diagnosis in December. He’s had the EMG, MRI at an ALS research center. Met with nutritionist, and the ” I Can talk clinic”

    Just yesterday my husband banked 200 sentences

    My questions for the Doctor are, does he have sporadic or bulbar?

  • vica

    Member
    January 24, 2025 at 5:33 am in reply to: How do you fill your cup on difficult days?

    My husband was just diagnosed in December. Just got done with all the test. Emg, MRI. We see doctor in February and I just know he’s going to say he has the bulbar onset. We are both scared. My husband is such a proud man, in great shape and a huge golfer. This truly has been a devastating last 2 months. We just traveled to Zion National Park, and plan on traveling a little more, until we can’t.

  • vica

    Member
    January 24, 2025 at 5:26 am in reply to: Do you prefer to shop in-store or online?

    My husband perfers online. His speech is slurring more, and he’s nervous about interacting with the public.

  • vica

    Member
    January 24, 2025 at 5:24 am in reply to: Would you rather: ALS edition

    My husband says the cold really bothers his legs. He actually wears long underwear now, when we walk outside ( Pennsylvania). He would’ve never worn them before.