John Watson
Forum Replies Created
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Hi Fran91,
My apologies, I posted an inactive link to Dr. Locatelli’s presentation. The presentation is available at https://www.youtube.com/watch?v=rj9SRJlvKps
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Hi Fran91,
Like others said a positive outlook is very beneficial for a pALS. In addition, you might find the recent and very informative EverythingALS presentation by Dr. Eduardo Locatelli on February 7 titled “How to Slow ALS Progression” applicable to your situation, especially since your diagnosis is recent. It is available at: https://www.everythingals.org/pastevents.
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In my case the issue was time wasted getting to the neurologist, who was very competent by the way. In my opinion the way to a quick, quality diagnosis should flow rapidly from the general practitioner (GP) to the neurologist without the GP fooling around with MRI’s, blood tests, etc. If a patient presents with possible neurological issues, e.g., foot drop, leg weakness, etc., accompanied by zero pain an immediate referral to a neurologist is in order. Personally, traveling this route would have knocked ~7-months off my diagnosis timeline.
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Hi Sandra,
My PT at the University of Utah clinic recommended a non-standard type of AFO from FootScientific for my foot drop (https://footscientific.com/collections/elevate-360-deluxe-accessory-kit/products/elevate-drop-foot-brace-2-0-with-deluxe-accessory-kit). I admit I’m a bit biased since I’ve never used the a standard AFO. However, I find the Foot Scientific brace easy to put on and remove. The main reason I like it is that the tension is adjustable to fit your activity level.
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A 4th Covid shot or booster is being recommended in Israel for those over 60.