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Good morning (Florida time) Caregivers!!
Outside of learning that your loved one has ALS, what has been the most difficult part of being a caregiver?
Have you struggled with working with insurance companies to get the adaptive devices or treatment your loved one needs?
Have the medical bills been clearly explained and is there assistance for what insurance does not cover?
Did your pALS medical care team provide you with information about ALS and resources?
What challenges or struggles are you currently facing? What could you use more information about or support with?
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