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How to talk to your neurologist?
From diagnosis to ongoing visits, many pALS feel intimidated when speaking to their neurologist. Before each visit we have expectations, questions and topics to discuss. But sometimes those items are never addressed. Whose fault is it?
Early on, I was shocked to learn that my doctor and I had different agendas: mine was rehabilitation and recovery, my doctor’s agenda was to provide palliative care. Plus, I wasn’t an “emergency” to fix. I was a patient with an ongoing, chronic condition.
Here’s how I approach each visit now: The One Thing to Always Bring to Your ALS Clinic
And I bring along my written list of questions, have them visible and go through them one by one with my doctor.
What do you do to improve your visits with your neurologist? Have you had disappointing visits? Let’s help each other with tips and ideas to improve conversations with our neurologist.
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