Forum Replies Created

  • Alper Kaya

    Member
    April 4, 2025 at 10:45 am in reply to: Welcome to the Slow Progression Forum discussion page

    Hi everyone,

    My name is Alper, living with ALS since 1990. I am a Slow progress and a long-time survivor. I am a medical doctor, ophthalmologist (retired)

    • Where in the world are you from? Turkiye (used to be known as Turkey)
    • When were you diagnosed? Diagnosed in Turkiye and traveled to United States for the second opinion in Houston Tx,
    • Are you on any treatments? No
    • What are your favorite activities? I used to play classical guitar, I try to find another way to play music using eyetracking.
    • Do you have a personal motto? Life is a miracle!
    • What is the best place you’ve visited? Italy, Milano Cathedral, Cappadoccia, Derinkuyu underground hidden city.
    • Warm greetings from Turkiye

  • Alper Kaya

    Member
    February 2, 2022 at 1:03 am in reply to: Skin pigmentation/ dark patches

    Yes, I have multiple dark cherry angiomas on my body.

  • Hi,

    We have a Facebook group for patients with ALS and families.  Its closed and +16 group in Turkey.

    https://www.facebook.com/groups/alsmnhturkiye

    Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.