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Member

April 4, 2025 at 10:45 am in reply to: Welcome to the Slow Progression Forum discussion page

Hi everyone,

My name is Alper, living with ALS since 1990. I am a Slow progress and a long-time survivor. I am a medical doctor, ophthalmologist (retired)

Where in the world are you from? Turkiye (used to be known as Turkey)
When were you diagnosed? Diagnosed in Turkiye and traveled to United States for the second opinion in Houston Tx,
Are you on any treatments? No
What are your favorite activities? I used to play classical guitar, I try to find another way to play music using eyetracking.
Do you have a personal motto? Life is a miracle!
What is the best place you’ve visited? Italy, Milano Cathedral, Cappadoccia, Derinkuyu underground hidden city.

Warm greetings from Turkiye

Member

February 2, 2022 at 1:03 am in reply to: Skin pigmentation/ dark patches

Yes, I have multiple dark cherry angiomas on my body.

Member

March 16, 2021 at 2:14 pm in reply to: Searching for caregiver support groups – – in Europe and beyond?

Hi,

We have a Facebook group for patients with ALS and families. Its closed and +16 group in Turkey.

Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.

Alper Kaya