

Alper Kaya
@Alper Kaya
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Joined Nov 2020 •
Active 3 months ago
Forum Replies Created
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Alper Kaya
MemberApril 4, 2025 at 10:45 am in reply to: Welcome to the Slow Progression Forum discussion pageHi everyone,
My name is Alper, living with ALS since 1990. I am a Slow progress and a long-time survivor. I am a medical doctor, ophthalmologist (retired)
- Where in the world are you from? Turkiye (used to be known as Turkey)
- When were you diagnosed? Diagnosed in Turkiye and traveled to United States for the second opinion in Houston Tx,
- Are you on any treatments? No
- What are your favorite activities? I used to play classical guitar, I try to find another way to play music using eyetracking.
- Do you have a personal motto? Life is a miracle!
- What is the best place you’ve visited? Italy, Milano Cathedral, Cappadoccia, Derinkuyu underground hidden city.
Warm greetings from Turkiye
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Yes, I have multiple dark cherry angiomas on my body.
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Alper Kaya
MemberMarch 16, 2021 at 2:14 pm in reply to: Searching for caregiver support groups – – in Europe and beyond?Hi,
We have a Facebook group for patients with ALS and families. Its closed and +16 group in Turkey.
https://www.facebook.com/groups/alsmnhturkiye
Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.