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    • #21372
      Sonsu
      Participant

      Has anyone experienced dark patches/ pigmentation on skin since diagnosis.

    • #21380
      Alper Kaya
      Participant

      Yes, I have multiple dark cherry angiomas on my body.

    • #21397
      Len Jax
      Participant

      Sonsu

      I had dark patches of skin in front of my ears and on my ankle/feet area.  My fingernails were also darker than normal.  Along with this, I was always fatigued.  Found out it was because I had Hemachromotis, which is a hereditary disease.  This caused my body to retain too much iron –  my ferritin level was off the charts.  Luckily I caught it in time, as it causes major organ damage if left untreated.  After 13 months of phlebotomies every two weeks, it was down to a low level once again.  I now have to have them every three months to maintain.  I still have the dark patches but am not as tired.  It is not related to my ALS.

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