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    • #18063
      Dagmar Munn
      Keymaster

      There are many well-established ALS/MND organizations in the US, UK and, Canada that focus on providing support for caregivers. But none that I’ve found in Europe or other countries. I’m often by our caregiving members who live overseas how they can connect with organizations that can offer help – – virtual, in-person or self-help programs (not fundraising or disease awareness).

      If you know of ALS/MND-related (or any!) international organizations, please share names and links.

    • #18066
      Alper Kaya
      Participant

      Hi,

      We have a Facebook group for patients with ALS and families.  Its closed and +16 group in Turkey.

      https://www.facebook.com/groups/alsmnhturkiye

      Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.

      • This reply was modified 7 months, 1 week ago by Alper Kaya.
      • #18076
        Dagmar Munn
        Keymaster

        Thank you, Alper for sharing that.

        Hopefully, this topic and all the answers will grow into a helpful resource for our international members.

    • #18557
      Bert
      Participant

      I actually just posted this on Instagram. You inspired me:

      https://www.instagram.com/p/CN6pvcnphSh/?igshid=1k30antialwl6

      If you are looking for your local ALS association, @als.mndalliance has a directory.

       

      Directory

       

      Or

       

      Find ALS/MND associations around the world

       

      They have other resources on their website as well.

       

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