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Searching for caregiver support groups – – in Europe and beyond?
There are many well-established ALS/MND organizations in the US, UK and, Canada that focus on providing support for caregivers. But none that I’ve found in Europe or other countries. I’m often by our caregiving members who live overseas how they can connect with organizations that can offer help – – virtual, in-person or self-help programs (not fundraising or disease awareness).
If you know of ALS/MND-related (or any!) international organizations, please share names and links.
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2 Replies
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Hi,
We have a Facebook group for patients with ALS and families. Its closed and +16 group in Turkey.
https://www.facebook.com/groups/alsmnhturkiye
Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.
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Thank you, Alper for sharing that.
Hopefully, this topic and all the answers will grow into a helpful resource for our international members.
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I actually just posted this on Instagram. You inspired me:
https://www.instagram.com/p/CN6pvcnphSh/?igshid=1k30antialwl6
If you are looking for your local ALS association, @als.mndalliance has a directory.
https://www.alsmndalliance.org/directory/
Or
https://www.alsmndalliance.org/find-als-mnd-association/
They have other resources on their website as well.
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