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    • #18063
      Dagmar Munn

        There are many well-established ALS/MND organizations in the US, UK and, Canada that focus on providing support for caregivers. But none that I’ve found in Europe or other countries. I’m often by our caregiving members who live overseas how they can connect with organizations that can offer help – – virtual, in-person or self-help programs (not fundraising or disease awareness).

        If you know of ALS/MND-related (or any!) international organizations, please share names and links.

      • #18066
        Alper Kaya


          We have a Facebook group for patients with ALS and families.  Its closed and +16 group in Turkey.

          Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.

          • #18076
            Dagmar Munn

              Thank you, Alper for sharing that.

              Hopefully, this topic and all the answers will grow into a helpful resource for our international members.

          • #18557

              I actually just posted this on Instagram. You inspired me:


              If you are looking for your local ALS association, @als.mndalliance has a directory.






              Find ALS/MND associations around the world


              They have other resources on their website as well.


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