Searching for caregiver support groups – – in Europe and beyond?

[Dagmar Munn]

There are many well-established ALS/MND organizations in the US, UK and, Canada that focus on providing support for caregivers. But none that I’ve found in Europe or other countries. I’m often by our caregiving members who live overseas how they can connect with organizations that can offer help – – virtual, in-person or self-help programs (not fundraising or disease awareness).

If you know of ALS/MND-related (or any!) international organizations, please share names and links.

[Alper Kaya]

Hi,

We have a Facebook group for patients with ALS and families.  Its closed and +16 group in Turkey.

https://www.facebook.com/groups/alsmnhturkiye

Only Turkish is spoken but we try to help the pals and cals from abroad who needs help.

[Dagmar Munn]

Thank you, Alper for sharing that.

Hopefully, this topic and all the answers will grow into a helpful resource for our international members.

[Bert]

I actually just posted this on Instagram. You inspired me:

https://www.instagram.com/p/CN6pvcnphSh/?igshid=1k30antialwl6

If you are looking for your local ALS association, @als.mndalliance has a directory.

 

Directory

 

Or

 

Find ALS/MND associations around the world

 

They have other resources on their website as well.

 

[Author]

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