autumn-renee-podzunas
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autumn-renee-podzunas
MemberAugust 19, 2021 at 4:06 pm in reply to: Update us on the research and trials you are in!!I’m in the Biogen Biib 78 Extension trial. My ALS has slowed but I’m still progressing.
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I use ankle weights (2.5 lb) on my hands and do peloton videos with my sisters over zoom. I work on the balance board while they do lower body. Soon I will be able to spend more time exercising. Light of course!
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I was exercising prior to my dx of 8/23/19. I was also told not to exercise to exhaustion. I walked on the treadmill and did weight bearing exercises. Now I do PT and OT and do the exercises they give me( mostly stretching and some body weight leg lifts, and balance training. I ride the exercise bike for 30 minutes 3x a week
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autumn-renee-podzunas
MemberFebruary 14, 2020 at 12:44 am in reply to: Are you a pALS who still works?Yes, I commute 20 miles each way 4 days a week. I have weakness in my right hand, ankle weakness, and flip foot. I’m still able to work but the stress worries me. I am not sure  when I should stop working.