[Nona]

We were given basic contact information for ALS association at the first clinic visit. No information was given by the neurologist other than the life expectancy was 2 to 5 years. I think I still feel angry that so little support was offered.
The best advice I received was from my brother who was diagnosed with Non Hodgkins lymphoma in 2003 and is still going strong. He said he looks in the mirror each day and says I may die from lymphoma but not today. So far I have been able to look in the mirror each day and say” my pals may die of ALS but not today. I am sure as this progresses, I may not be able to say that with certainty every day, but for now it helps me keep a positive outlook.