Base

Name

Curt Vong

Nickname

curt-vong

Year of Birth

1956

Gender

Male

Location

Western South Carolina

Relationship

Patient

Short Bio

I was diagnosed with sporadic ALS on Oct 15, 2021.  Leg weakness first noticed June, 2021.  Both legs are now weak and I use walking sticks when I go for a longer walk.  I have always participated in multiple sports and eat healthy.  I take Riluzole, Theracurmin and a multivitamin. I am participating in a clinical for AMX0035… 40% chance of it being a placebo.  I wish everyone on this forum my best!

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

7 months since diagnosis

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