[Dutch Root]

Ya, I have muscle twitching 24 hours a day. It started 2 years ago. It was one of the symptoms I had never experienced that led me to a neurologist and my ALS diagnosis. Twitching is exacerbated by any physical movement and stress. They are not painful. I do not take any medication to treat it.

[Dutch Root]

Hi Everyone, I am new to this forum. I am grateful for my loving wife and family who support me through this most challenging event event in my life. While my wife, is my primary caregiver, I also have caregivers who come to our home to give my wife a break. They are awesome and I am very grateful for them. I’m also grateful we have good medical insurance in addition to Medicare. The ALS Association , Texas Chapter, has been an amazing support.

My toughest struggles are with mindset and attitude. I still have my us and downs. Every time I lose some functionality, I have to regroup mentally to keep up this fight. I’ve started journaling including things I am grateful for. I believe I have ALS for a reason. I continue to search for that higher purpose.

I’m hoping this forum will help to clarify my purpose and minimize the anger, despair, and helplessness that I feel at times. Just being honest.