[Stacie Fleming]

Hello – My husband has been taking ibudilast for close to a year now. He gets it through Europe as well for about the same price that was questioned. He also takes Riluzole and Neudexta, along with a cocktail of vitamins. The doctor prescribed a very large dosage – my husband takes 50ml less than prescribed because it was too much for his stomach at the full dosage. I am curious why the trial docs do not want patients also on Neudexta? Is it a safety issue? As far as whether it is slowing progression, it is really hard to say. My husband was 40 when he was diagnosed – 39 when he had his first symptom. He had an uncle who passed from ALS, but they have not found any known familial ALS genes.

Good luck to those looking to try it.