@frjn
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John Wagner replied to the topic What’s going right for you this week? in the forum Living With ALS 1 day, 2 hours ago
First off, I must confess to being jealous of signs of spring. We’re just a short jaunt from the Canadian border, in far upstate New York. Snow and ice are still very much Order of the Day here. Can’t wait to actually see grass again!!
I have likewise been sleeping well, and you’re right in that a good night’s sleep sets the stage for a go…[Read more]
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John Wagner replied to the topic End of Life Topics in the forum Living With ALS 1 year, 7 months ago
Hi, folks! I so appreciate the previous responses. My approach to this matter is likely somewhat different than the approaches of many.
I am a Priest in the Episcopal Church and ensured at each and every parish I served to do evening sessions on end-of-life planning every three years or so. My preferred materials come from fivewishes.org The…[Read more]
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Amanda and
John Wagner are now friends 2 years, 2 months ago
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John Wagner replied to the topic Online vs. in-person meetings and events: do you have a preference? in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 years, 2 months ago
Hi, folks!! I must admit to being a bit of a predeluvian dinosaur when it comes to things digital. Nonetheless, Zoom has proven to be of nearly incalculable help when keeping groups of folks together. However, I can not wait until we can meet with folks face-to-face again. With that having been said, I also give thanks that the room in whi…[Read more]
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John Wagner replied to the topic Vaccine on the horizon in the forum Coronavirus (COVID-19) and ALS 2 years, 3 months ago
I definitely plan on receiving the vaccine, and hope that my wife (caregiver) will also. Any short-lived discomfort from some the reported side effects appear to be minor compared to actually having the COVID-19 virus.
Fr. John
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John Wagner became a registered member 2 years, 8 months ago
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Hello John,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]
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Hello John, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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