Janice

I TAKE A FEW PROTEIN POWDERS AND I SEARCH THEM TO BE NO SUGAR AND GLUTEN.  I USE PRODUCTS FROM AMAZON. I JUST PURCHASED A CANNISTER OF MACROLIFE – MACRO MEAL A SUPERFOOD.  WHEN I TAKE THIS IN THE MORNING I DON’T USUALLY FEEL SLEEPY IN THE AFTERNOONS.

I’LL START THIS EVENING AND POST MY EFFORTS.

THANK YOU MEREDITH WITH THIS INFORMATION.  I’LL TALK WITH MY PCP AND THE ALS DOCTOR REGARDING THIS.  JAN

MY MOTHER AND HER 3 BROTHERS HAD ALZHEIMERS.  I WAS DIAGNOSED WITH BULBAR ALS THIS SPRING.  MY HUSBAND BUD PASSED ON 10-10-2016 AND WE ATE A LOT OF SUGAR IN SWEETS AT OUR PICNICS AND MY SISTER’S FAMILY BIRTHDAYS AND CHRISTMAS GET TO-GETHERS.  I DO NOT EAT ICECREAM OR SWEETS NOW.  I PUREE ALL MY FOOD FOR THE TUBE FEEDING AND STILL CAN WALK ARO…[Read more]

HELLO TODAY – I HAVE BULBAR ALS AND NEUROPATHY.  I TAKE AMITRIPYLINE 50MG AT NIGHT AND IT HELPS WITH NEUROPATHY.  I’VE ALSO TAKEN MANY SUPPLEMENTS FOR PAIN.  DOES ANYONE HAVE OTHER IDEAS FOR PAIN.  JAN WEST

Hello all – I will get stem cells this year.  They really worked well last year.  They took the pain away.  I’m glad I moved to NC 2 years ago with my eldest son, Mike.  Jan West

Hello everyone – does anyone have bulbar ALS which I have?  I would appreciate your thoughts on this and thank you!   Janice West

HELLO YES I’VE HAD 2CC OF STEM CELLS IN AUGUST 2020 AND MY SON PAID FOR IT.  I FELT BETTER FOR MONTHS AND IT LASTS 9 MONTHS AND I’LL TRY IT AGAIN.

Thank you for this forum. I realize now how many people have ALS. I never would expect these symptoms but in my body they are now swelling muscles. I can still walk and do my chores but wonder how much longer can I exist.

Hello this is Jan from NC and I had 2cc of stem cells on October 24, 2020. In the past 3 years I’ve had prediabetes and no meds because my numbers were lower. I eat organic food and puree it because I’ve lost my chewing. In the past I took three different meds for acid reflux. After that, I lost my voice. I take many supplements especially for…[Read more]