@gladone5
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Janice replied to the topic I NO LONGER SWALLOW in the forum Living With ALS 6 months, 2 weeks ago
I TAKE A FEW PROTEIN POWDERS AND I SEARCH THEM TO BE NO SUGAR AND GLUTEN. I USE PRODUCTS FROM AMAZON. I JUST PURCHASED A CANNISTER OF MACROLIFE – MACRO MEAL A SUPERFOOD. WHEN I TAKE THIS IN THE MORNING I DON’T USUALLY FEEL SLEEPY IN THE AFTERNOONS.
I’LL START THIS EVENING AND POST MY EFFORTS.
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Janice started the topic I NO LONGER SWALLOW in the forum Living With ALS 6 months, 2 weeks ago
I FIND THAT I ONLY USE THE FOOD TUBE. WHEN I EAT BY MOUTH I FIND THAT I DEAL WITH EXCESS SALIVA AND I COUGH. I TAKE GLYCOPYRRALATE FOR EXCESS SALIVA AND THAT HELPS. I TAKE MANY SUPPLEMENTS AND POWDERS AND THAT MAKES ME FEEL BETTER. I USE WATER BEFORE AND AFTER TAKING BY FOOD TUBE.
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Janice replied to the topic Familial ALS in the forum Diagnosis Information and General Questions 7 months ago
THANK YOU MEREDITH WITH THIS INFORMATION. I’LL TALK WITH MY PCP AND THE ALS DOCTOR REGARDING THIS. JAN
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Janice replied to the topic Familial ALS in the forum Diagnosis Information and General Questions 7 months ago
MY MOTHER AND HER 3 BROTHERS HAD ALZHEIMERS. I WAS DIAGNOSED WITH BULBAR ALS THIS SPRING. MY HUSBAND BUD PASSED ON 10-10-2016 AND WE ATE A LOT OF SUGAR IN SWEETS AT OUR PICNICS AND MY SISTER’S FAMILY BIRTHDAYS AND CHRISTMAS GET TO-GETHERS. I DO NOT EAT ICECREAM OR SWEETS NOW. I PUREE ALL MY FOOD FOR THE TUBE FEEDING AND STILL CAN WALK ARO…[Read more]
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Janice replied to the topic Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS 7 months, 1 week ago
HELLO TODAY – I HAVE BULBAR ALS AND NEUROPATHY. I TAKE AMITRIPYLINE 50MG AT NIGHT AND IT HELPS WITH NEUROPATHY. I’VE ALSO TAKEN MANY SUPPLEMENTS FOR PAIN. DOES ANYONE HAVE OTHER IDEAS FOR PAIN. JAN WEST
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Janice replied to the topic Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS 7 months, 2 weeks ago
Hello all – I will get stem cells this year. They really worked well last year. They took the pain away. I’m glad I moved to NC 2 years ago with my eldest son, Mike. Jan West
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Janice replied to the topic Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS 7 months, 2 weeks ago
Hello everyone – does anyone have bulbar ALS which I have? I would appreciate your thoughts on this and thank you! Janice West
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NJGuy and
Janice are now friends 7 months, 2 weeks ago
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Janice replied to the topic Stem Cell therapy for ALS in the forum Using our Forums 8 months, 1 week ago
HELLO YES I’VE HAD 2CC OF STEM CELLS IN AUGUST 2020 AND MY SON PAID FOR IT. I FELT BETTER FOR MONTHS AND IT LASTS 9 MONTHS AND I’LL TRY IT AGAIN.
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Janice replied to the topic Reflections and Looking Ahead in the forum Living With ALS 1 year, 4 months ago
Thank you for this forum. I realize now how many people have ALS. I never would expect these symptoms but in my body they are now swelling muscles. I can still walk and do my chores but wonder how much longer can I exist.
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Janice posted a new activity comment 1 year, 5 months ago
I KNOW HOW YOU FEEL AND IT IS SHOCKING ABOUT THIS ALS CONDITION AND HOW OUR BODIES FEEL. OOH, BUT KEEP UP YOUR FAITH AS I AM AND THANK GOD EACH DAY WE ARISE!
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Janice posted an update 1 year, 5 months ago
I’M HAPPY TO BE LIVING WITH MY SON,MIKE, MY CARETAKER. HE IS AN EXCELLENT SON AND ALWAYS SAID, “MOM & DAD” I’LL TAKE CARE OF YOU WHEN IT IS TIME! MY HUSBAND, BUD, PASSED ON 10-12-2016 AND THANKFUL I AM STILL ALIVE. I THANK GOD EACH DAY I ARISE!
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Janice replied to the topic Living Longer with ALS in the forum Living With ALS 1 year, 5 months ago
Hello this is Jan from NC and I had 2cc of stem cells on October 24, 2020. In the past 3 years I’ve had prediabetes and no meds because my numbers were lower. I eat organic food and puree it because I’ve lost my chewing. In the past I took three different meds for acid reflux. After that, I lost my voice. I take many supplements especially for…[Read more]
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Janice posted an update 1 year, 5 months ago
I’M HOPING SOMETHING NEW FOR ALS PATIENTS COMES UP IN THE NEAR FUTURE – SOMETHING FOR ALL OVER BODY PAIN AND FEET NEUROPATHY. I THANK OUR LORD EACH MORNING I ARISE AND LOVE MY FAMILY!!
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Janice became a registered member 1 year, 6 months ago
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Hello Janice,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Janice, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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