[Lynn Goldberger Gross]

Getting up from a chair.  Any affordable good recliners?  Help

[Lynn Goldberger Gross]

This is my first time participating in this forum.  After reading about these trials, I feel that my husband, who has ALS  , would not be helped by going into the third phase of a trial.  He may be offered a spot in the Reldesemtiv ( cytokinetics) trial phase 3 and I have gleaned from everyone’s responses, these trials are really for the next generation and probably won’t help him.  The trial is 4 hours away and now I’m not sure I should put him thru this. HELP

[Lynn Goldberger Gross]

Bill. I am curious about the side effects your friends have experienced from Rilizole.  My husband has been on it for a year and and within the last few months , he has passed out and fallen.  One of these required a hospital visit. What side effects do your ALS friend complain about?  Is dry mouth one of them?

I’m not happy with the ALS clinic because I realize it’s not for us but for research for the next generations. Being a Guinea pig is not a cure for us. This May sound selfish but I’m interested in approving and saving his life.saving