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Jim started the topic Another theory! Causes of ALS in the forum ALS News 1 year, 2 months ago
Hi Everyone, It may or may not be new knowledge, but have a theory about theo Possible or probable causes of ALS. Why are most of the large ALS clusters in the USA in the north near the Great Lakes and in the North East? Well, I have a theory or there is a theory?
Looked at maps of ALS distribution, these clusters are near water, I then looked…[Read more]
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Jim replied to the topic ALS Association Announces Goal of Making ALS Livable by 2030 in the forum Research Topics 1 year, 2 months ago
I’m switching any donations on emails etc.. away from the ALS association until we see more tangible results from them!
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Jim replied to the topic We Help One Another in the forum ALS Awareness Month 1 year, 3 months ago
Hi Amanda, Thank you for bringing up the topic about advocacy and ALS awarness! Richard and I have been working closely sending dozens of emails to media outlets, philanthropic organizations and posting on social media. Richard has already sent a list of emails and an email template here on the forum anyone can use! Even a few people getting…[Read more]
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Jim replied to the topic ALS Awareness Month – Needs to Reach the non-ALS Community! in the forum ALS Awareness Month 1 year, 3 months ago
Hi Everyone,
Anytime is a Great time to get involved, but especially during ALS awareness month! And there’s of course still plenty of time to get involved this month! Spread the word about May ALS awareness month on social media, contact your local news or state representatives and even send e-mails to national media outlets. Anything you feel…[Read more]
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Jim replied to the topic Ideas and events to ease your way into ALS advocacy in the forum ALS Awareness Month 1 year, 3 months ago
Hi Everyone, ALS month is a Great time to spread ALS awareness! Richard ‘sparked this recent initiative and Dagmar as usual is actively engaged. Dagmar has done so much over the years for ALS, Dagmar and Amanda are such Heros!
You may ask what can I do as a forum member to spread the word about ALS month? The answer is lots!
#1 Copy/paste a…[Read more]
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Jim changed their profile picture 1 year, 3 months ago
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Jim replied to the topic ALS Awareness Month – Needs to Reach the non-ALS Community! in the forum ALS Awareness Month 1 year, 3 months ago
Hi Everyone, I’m with you on this Richard and will start emailing very soon after writing a template email and also knowing where people (non-pALS and pALS) should/can donate? I’d rather people including myself Not donate to any big pharmaceutical companies or companies affiliated with them. Many pharmaceutical companies are already selling…[Read more]
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Jim replied to the topic ALS Awareness Month – Needs to Reach the non-ALS Community! in the forum ALS Awareness Month 1 year, 3 months ago
Hi, Wanted to mention, Since it’s ALS awareness month. Thought people here on the forum including myself could also post on various social media sites the Interactive ALS flyer, sites like FB, Twitter, Instagram, Tiktok etc. For instance I recently posted a photo not related to ALS a few months ago on ‘imgur and it got 157,000 views within a…[Read more]
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Jim replied to the topic ALS Awareness Month – Needs to Reach the non-ALS Community! in the forum ALS Awareness Month 1 year, 3 months ago
Richard your Correct, not enough people are aware of ALS! Really Surprised only a few States/Governors have declared May an ALS awareness month! Although, I’ve been living abroad for many years, would still submit the ALS Information to local news and radio stations in Florida where I grew up and would look into submitting this info to the…[Read more]
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Russell and
Jim are now friends 1 year, 3 months ago
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Jim replied to the topic What's the latest news on AMX0035? in the forum Research Topics 1 year, 4 months ago
If there is any article/trial which states Sodium Benzoate can be neurotoxic, I’d definitely stay away from Sodium Benzoate! Looks like Tudca and many other supplements have shown ‘Promise with slowing progression! Best stick with the supplements that have some solid foundation within trials and light exercise (my opinion)! Thank you Isabella for…[Read more]
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Len Jax, your response absolutely moved me! Your insight and approach to dealing with ALS is healthy and inspiring. I am so happy that you, and others can express their thoughts, fears, concerns and accomplishments here and I hope they feel safe and supported. Please, please keep us posted on how you are doing. Sometimes I find it interesting how…[Read more]
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Jim replied to the topic ALS Life Expectancy vs. Quality Of Life in the forum Living With ALS 1 year, 4 months ago
Think what Richard implied was doctors should concentrate more on quality of life, not only longevity. The question wasn’t ‘What is quality of life with ALS, that can be objective, different from person to person! Quality of life.. As for myself, I was very active swimming, hiking in mountains, daily walking in the park, exercise at the gym and…[Read more]
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Jim changed their profile picture 1 year, 4 months ago
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Jim changed their profile picture 1 year, 4 months ago
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Jim changed their profile picture 1 year, 4 months ago
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Jim replied to the topic Ketamine in The Treatment of ALS in the forum Research Topics 1 year, 5 months ago
Yes, Ketamine is a very serious drug. It’s very clean feeling, very, very hallucinogenic and can have out of body experiences! Some of these trials are ridiculous, like the researchers are just trying any substance. Hope these trials don’t cost too much money! Doesn’t seem like ketamine would slow any ALS progression, But Not sure how Ketamine…[Read more]
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Jim replied to the topic Researchers Identify the Trigger of Key Cellular Change in ALS in the forum Research Topics 1 year, 5 months ago
Hi Richard, Your definitely doing overtime, with your research into ALS. All the articles are Very Very Appreciated! The last article hit home, as the article stated injury/infection plays a role with ‘astrocytes resulting in miscommunication/dysfunction. At first I was thinking air/traffic pollutants day after day ‘Could have caused ALS, But…[Read more]
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Jim and
David Crellin are now friends 1 year, 5 months ago
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Jim replied to the topic New study shows ALS/MND damage to nerve cells can be repaired by improving the energy levels in mitochondria in the forum Research Topics 1 year, 6 months ago
Interesting! And Thank you ‘Dagmar for passing on that information/article! Lots of research and trials have been going on, how effective many are in slowing down symptoms is questionable; But very good to see progress is being made! We definitely need good news! It’s been known mitochondria (dysfuction) plays a role in ALS. Would be extremely…[Read more]
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Dagmar Munn and
Jim are now friends 1 year, 6 months ago
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