[Maw]

If anyone can tell me of a Doctor/clinic in the Maryland area that they love I would appreciate the information. As, like I stated above , I’m not really being treated, just seen/observed, at the one I am currently  at.

[Maw]

I was diagnosed in Dec 2019 and my experience with my Dr and ALS Clinic has been dismal at best. I don’t hear from them unless I call them.  I have never been contacted to see how I am doing, so far during Covid no one has checked in on me. I am seen at one of the biggest Research hospitals in the United States in the mid Atlantic region and I have not once been contacted about clinical trials in spite of the fact that I have inquired several times. Any clinical trials I have applied to I have found and applied to in my own, although I have yet to get into one.  Every time I ask about a new treatment they blow it off and just say it hasn’t been proven yet. When I ask about seeking treatment in another country because there isn’t much here they say don’t waist your money and go live your best life. If I had options to be seen somewhere else I would. They only seem to be interested in their own research and in those patients enrolled in their trials. Horrible way to treat patients and run a clinic. I feel they are to caught up in research and have forgotten that we are patients.