@jamesag
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James A Gans's profile was updated 9 months, 1 week ago
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James A Gans replied to the topic Virtual Meeting in the forum ALS Awareness and Advocacy 9 months, 2 weeks ago
I am interested in attending a virtual or zoom meeting. At 69 my ALS started lightly one year ago and now my arms especially the right arm is very weak along with strong fatigue. I miss my violin very much. Please let me know if and when the virtual meeting will be. Thank you!
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James A Gans and
Amanda are now friends 1 year, 1 month ago -
James A Gans changed their profile picture 1 year, 2 months ago
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James A Gans and
Dagmar Munn are now friends 1 year, 2 months ago -
James A Gans posted a new activity comment 1 year, 2 months ago
Thank you so much for all your information. And I’m sure I will have more questions in the near future. I will try to continue various exercises. Today I tried to shovel away a portion of our 1 ½ foot snowfall from yesterday and last nigh and got very tired from the shoveling. I guess that was my exercise for today.
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James A Gans posted a new activity comment 1 year, 2 months ago
Hello Dagmar Because I’m new on this site I’m not sure if I contact you directly this way and if it’s ok to do so. First I would like to mention that I enjoyed your Positive Rituals and My Evolving Morning Routine. I have been meditating on and off since my early 20’s but I have been doing Sanskrit mantras as well in the past 6 or 7 years. I’m…[Read more]
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Hello James, This is a good way to contact me, although it is via “public” messaging, which is OK. If you want to discuss something not meant for public view, just send a “private message” (this option is found on your profile page).
Thank you for your comments about my recent column – – and kudos for your mantras and chanting. In my professional…[Read more]
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Thank you so much for all your information. And I’m sure I will have more questions in the near future. I will try to continue various exercises. Today I tried to shovel away a portion of our 1 ½ foot snowfall from yesterday and last nigh and got very tired from the shoveling. I guess that was my exercise for today.
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James A Gans posted a new activity comment 1 year, 3 months ago
Thank you Amanda for your response. I’m sorry that ALS has been so strongly genetic in your family. I don’t believe anyone in my paternal or maternal side had ALS. Although I had a paternal great grandfather who passed away 52 years before I was born at age 40 in 1900. I don’t know if it was possibly ALS but more likely cancer. My ALS started…[Read more]
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James A Gans posted a new activity comment 1 year, 3 months ago
Thank you Dagmar It has taken several months to accept that I have ALS and research information. I still have to have another EMG and MRI within the next several weeks.
I would like to ask you a question if you have time to respond. Because you have been diagnosed with ALS over 10 years ago have you and are continually taking a medication like Riluzole?-
Hello James, Yes, I have been taking Rilozule these past 10 years. Started it right after I was diagnosed. It’s the only medication I take.
Good luck with the EMG and MRI… there are a lot of tests to endure with ALS…you can survive 🙂
And, thank you for the kind comment on my recent column. In my reply, I shared the link to my ALS and…[Read more]
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James A Gans became a registered member 1 year, 3 months ago
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Hello James,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Thank you Dagmar It has taken several months to accept that I have ALS and research information. I still have to have another EMG and MRI within the next several weeks.
I would like to ask you a question if you have time to respond. Because you have been diagnosed with ALS over 10 years ago have you and are continually taking a medication like Riluzole?-
Hello James, Yes, I have been taking Rilozule these past 10 years. Started it right after I was diagnosed. It’s the only medication I take.
Good luck with the EMG and MRI… there are a lot of tests to endure with ALS…you can survive 🙂
And, thank you for the kind comment on my recent column. In my reply, I shared the link to my ALS and…[Read more]
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Hello James, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Thank you Amanda for your response. I’m sorry that ALS has been so strongly genetic in your family. I don’t believe anyone in my paternal or maternal side had ALS. Although I had a paternal great grandfather who passed away 52 years before I was born at age 40 in 1900. I don’t know if it was possibly ALS but more likely cancer. My ALS started…[Read more]
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