Forum Replies Created

  • Janette Anne McIntosh

    Member
    October 29, 2020 at 6:49 pm in reply to: Research

    My mother got ALS in 1974 at age 50 and died in 1974. Her mother passed away at age 71 but little was known at the time about ALS. My youngest brother was diagnosed in July 2014 at age 55 and died in August 2015.  My oldest brother who is 75 possibly has recently been told he has it although his appt is with his doctor in November.  I’ve gone back through my grandmother’s parents but they lived to be a good age and no indication they had ALS

     

    Janette McIntosh

     

  • Janette Anne McIntosh

    Member
    October 29, 2020 at 6:42 pm in reply to: Should I get genetic testing?

    I did 23 and me but it didn’t definitely come back that I had high risk although it showed trending upward. It was bang on with high risk of colon cancer which I had.  I don’t think I’d want to know.