@jbwoods3034
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John Woods replied to the topic Voice-activated devices; are they a help or a challenge? in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 years, 2 months ago
I am in fairly early stage of ALS, I can’t walk but while my voice is much weaker I can still speak. My wife and I sleep in separate room to give her more sleep than when I’m making noise struggling to turn over and find a comfortable (somewhat) position. I have an Alexa dot beside my bed and she can still understand me when I tell her to call my…[Read more]
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John Woods replied to the topic ALS Clinics — Why Do You or Why Don't You Participate? in the forum Living With ALS 2 years, 3 months ago
I was diagnosed in December 2020 (misdiagnosed for 3 years) attended my first ALS clinic in early February, met with everyone on the team and was fairly satisfied. Being new and still in shock I didn’t know what to expect. My doctor there referred me to Duke University ALS clinic for a 2nd opinion. Spent two days at Duke and was very very p…[Read more]
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John Woods replied to the topic Looking Towards a Brighter Future in the forum Coronavirus (COVID-19) and ALS 2 years, 4 months ago
I got my first vac a week ago, no side effects.get my 2nd on Feb 4. Hope to get to see my grandkids after that. I have lots of family and friends who want to come visit but not until all of us have been vaccinated. Saturday is our 50th wedding anniversary, we will be alone but have set up a Zoom session for family and friends to drop in. One rule,…[Read more]
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Dagmar Munn and
John Woods are now friends 2 years, 4 months ago
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Amanda and
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John Woods posted a new activity comment 2 years, 5 months ago
Dagmar, thanks for reaching out, I have read some of your posts and appreciate your input and help, At this point I’m still trying to get my head around the diagnosis and do what research I can to prepare my family and I for what is to come. This site looks like very helpful place for me to get answers from others going through the same thing.…[Read more]
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John Woods became a registered member 2 years, 5 months ago
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Hello John,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Dagmar, thanks for reaching out, I have read some of your posts and appreciate your input and help, At this point I’m still trying to get my head around the diagnosis and do what research I can to prepare my family and I for what is to come. This site looks like very helpful place for me to get answers from others going through the same thing.…[Read more]
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Hello John, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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