Forum Replies Created

  • Kevin

    Member
    July 1, 2021 at 9:00 am in reply to: ALS Awareness Month 2021 Member Spotlight: John Sprague

    I am with you, brother. I was diagnosed with ALS in May 2012. It was very slow progressing at first. Mainly in my hands, arms, and shoulders. Ironically, my shoulders were always my best asset, and I was proud of them. Within the last five years or so, it has progressed to my legs.  I can still walk, but with much difficulty, and not very far. I am faced with going to a nursing facility, since if I cannot walk or stand, my family will no longer be able to keep me at home. My wife happens to be meeting this morning with our financial advisor and an attorney who specializes in this area.  Like you, I have come to terms with this disease for the most part. The hardest part,  for me, is how it has affected my family.

  • Kevin

    Member
    December 29, 2020 at 4:10 pm in reply to: Leg jerks

    My doctor, a renowned neurologist at the Cleveland Clinic, prescribed me Mexiletine for my leg cramps. It has really helped me.