@loyalng
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loyalng replied to the topic Severe coughing/ choking episodes in the forum Living With ALS 5 months, 3 weeks ago
Same here with the mucous, can you send me an image/model of the cough assist machine you’re using ? thanks
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Dagmar and
loyalng are now friends 1 year, 4 months ago -
loyalng replied to the topic A fast way to win ALS not totally but … (part 1) in the forum Research Topics 1 year, 7 months ago
Continue please .Tks
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Kathryn F. Kennedy and
loyalng are now friends 1 year, 7 months ago -
Amanda and
loyalng are now friends 1 year, 8 months ago -
loyalng replied to the topic Stem Cells – Neoronata-R in the forum Research Topics 1 year, 8 months ago
3 times /2 shots in May – June 2018
I didn’t see any results
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loyalng replied to the topic Update and tid bits on gene therapy – Investigational therapies in the forum Research Topics 2 years, 2 months ago
Hello Nancy
What about TDP-43 which is seen in more than 90% of ALS cases? please share anything you know about it.
thanks
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loyalng posted an update 2 years, 8 months ago
@jplerouzic you are super star, I borrow your ple to share on fb
It’s really interested in Zolgensma and I hope one day we could get generic version at few thousand Dollars-
Many thanks for the kind words Loyalng!
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loyalng's profile was updated 2 years, 8 months ago
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loyalng changed their profile picture 2 years, 8 months ago
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loyalng became a registered member 2 years, 9 months ago
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Hello Loyalng, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]
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Welcome to the ALS forum Loyalng. I’m Amanda, one of the co-moderators of the forum. Please take a look at the topics and discussions and join in. You are welcomed to post topics, ask questions, respond to other members and make comments. If you have any suggestions on how to improve the forum, please let us know. We want to make this forum a…[Read more]
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