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loyalng

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@loyalng

@jplerouzic you are super star, I borrow your ple to share on fb It’s really interested in Zolgensma and I hope one day we could get generic version at few thousand Dollars View
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    loyalng replied to the topic Severe coughing/ choking episodes in the forum Living With ALS 1 year, 10 months ago

    Same here with the mucous, can you send me an image/model of the cough assist machine you’re using ? thanks

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    Dagmar Munn and Profile picture of loyalngloyalng are now friends 2 years, 8 months ago

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    loyalng replied to the topic A fast way to win ALS not totally but … (part 1) in the forum Research Topics 2 years, 12 months ago

    Continue please .Tks

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    Kathryn F. Kennedy and Profile picture of loyalngloyalng are now friends 3 years ago

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    Amanda and Profile picture of loyalngloyalng are now friends 3 years ago

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    loyalng replied to the topic Stem Cells – Neoronata-R in the forum Research Topics 3 years ago

    3 times /2 shots in May – June 2018

    I didn’t see any results

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    loyalng replied to the topic Update and tid bits on gene therapy – Investigational therapies in the forum Research Topics 3 years, 7 months ago

    Hello Nancy

    What about TDP-43 which is seen in more than 90% of ALS cases? please share anything you know about it.

    thanks

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    loyalng posted an update 4 years ago

    @jplerouzic you are super star, I borrow your ple to share on fb
    It’s really interested in Zolgensma and I hope one day we could get generic version at few thousand Dollars

    • Profile picture of Jean-Pierre Le Rouzic
      Jean-Pierre Le Rouzic replied 4 years ago

      Many thanks for the kind words Loyalng!

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    loyalng's profile was updated 4 years ago

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    loyalng changed their profile picture 4 years ago

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    loyalng became a registered member 4 years, 1 month ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 4 years, 1 month ago

      Hello Loyalng, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]

    • Profile picture of Amanda
      Amanda replied 4 years, 1 month ago

      Welcome to the ALS forum Loyalng. I’m Amanda, one of the co-moderators of the forum. Please take a look at the topics and discussions and join in. You are welcomed to post topics, ask questions, respond to other members and make comments. If you have any suggestions on how to improve the forum, please let us know. We want to make this forum a…[Read more]

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