My sister was diagnosed last January and is progressing rapidly. She is completely non-ambulatory. I’m with her from Sunday to Thursday afternoon. When I leave, we have caregivers from Home Instead in Indianapolis step in. I spend my “off” days catching up with my hubby and just resting. I have to admit to being exhausted and suffer with bouts of depression. However, that in no way compares to what my little sis is going through.
My sister had developed an intense itch in the last few weeks. Is this a normal occurrence with ALS? She was diagnosed 1/3/2020. Her deterioration has been rapid.
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