ALS News Today Forums | Matt Ashley | Activity https://alsnewstoday.com/forums/members/mattashley/activity/ Activity feed for Matt Ashley. Fri, 17 Apr 2026 13:37:06 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 06965fadb9ce69425565df9ffb6343d3 Matt Ashley replied to the discussion What are your thoughts about feeding tubes? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-are-your-thoughts-about-feeding-tubes-2/#post-26690 Fri, 22 Aug 2025 01:39:53 -0500 Reply to What are your thoughts about feeding tubes?

I found that meticulous attention to changing the dressing every day kept the site healthy. You should flush the tube with distilled water daily and have the tube changed every 3-5 months depending on what your healthcare team recommends. We use a Drawtex pad instead of gauze around the tube as it is more absorbent and less abrasive to the…

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]]> e4bc12cf6d65a2efd8b9e06d33d21b66 Matt Ashley replied to the discussion What are your thoughts about feeding tubes? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-are-your-thoughts-about-feeding-tubes-2/#post-26624 Fri, 18 Jul 2025 02:43:28 -0500 Reply to What are your thoughts about feeding tubes?

I got my tube several years ago before I needed it.

]]> 67b99f40134e0219bf5f73393e69c8c8 Matt Ashley replied to the discussion Have you been involved in Stem Cell Research? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/have-you-been-involved-in-stem-cell-research/#post-26539 Thu, 05 Jun 2025 21:36:39 -0500 Reply to Have you been involved in Stem Cell Research?

I have not been involved but I would be very willing to try.

]]> 4b6a45a839c86c3cfc6b9e15d862cafb Matt Ashley replied to the discussion What would you say to your younger self? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-would-you-say-to-your-younger-self/#post-26119 Thu, 21 Nov 2024 22:48:04 -0600 Reply to What would you say to your younger self?

Love those

]]> a5b135bedc41705e737563389323f6dc Matt Ashley replied to the discussion Volunteering for ALS research in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/volunteering-for-als-research/#post-25927 Wed, 18 Sep 2024 02:26:02 -0500 Reply to Volunteering for ALS research

I am part of a user forum for one of the BC

]]> 0674f37bd654a2f59be42ee41a7c8b95 Matt Ashley replied to the discussion What are YOUR goals? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-are-your-goals-2/#post-25859 Thu, 15 Aug 2024 21:11:03 -0500 Reply to What are YOUR goals?

Being at my daughter’s wedding in September

]]> 0dea26382905287546c90c5e4092316b Matt Ashley replied to the discussion Problems of communication while using Bipap mask in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/problems-of-communication-while-using-bipap-mask/#post-25686 Tue, 02 Jul 2024 20:17:05 -0500 Reply to Problems of communication while using Bipap mask

Try nose pillows.

https://lofta.com/products/airfit-p10-nasal-pillow?currency=USD&stkn=8590bdcd4651&utm_campaign=US-CPAP_Mask_Collection-SMART-GSN-SHOP&utm_source=google&utm_medium=cpc&gad_source=1&gclid=CjwKCAjwyo60BhBiEiwAHmVLJSeVfPqbKndLuDa62GzlGc035uQCRMMI2SCcAuUb64xVhfBB3T9MxxoC_NAQAvD_BwE

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]]> f134f2c269f3c21a152ed2c261b70c9c Matt Ashley replied to the discussion Problems of communication while using Bipap mask in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/problems-of-communication-while-using-bipap-mask/#post-25685 Tue, 02 Jul 2024 20:09:18 -0500 Reply to Problems of communication while using Bipap mask

When I need to

]]> 4c880c607d4b4ef0cdefd8140ae1dd77 Matt Ashley replied to the discussion Tracheotomy in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/tracheotomy-2/#post-24252 Thu, 20 Jul 2023 22:13:05 -0500 Reply to Tracheotomy

Mike,

I was not aware that Medicare paid for home help. Is this a feature of Medicare Advantage?

 

 

]]> c8b63d492dd4d1b494b61f31e1f6da52 Matt Ashley replied to the discussion Awaiting Diagnosis in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/awaiting-diagnosis-2/#post-24161 Tue, 04 Jul 2023 19:50:19 -0500 Reply to Awaiting Diagnosis

Vernon,

My prayers and thoughts are with you for a quick diagnosis and treatment. I have found the VA to be very supportive in regards to ALS. They have been very good about getting durable medical equipment like hospital bed, ventilators, power wheelchair and wheelchair conversion van.

God bless,

Matt Ashley

 

]]> 29468abf27e70792a8dd1315a8018109 Matt Ashley replied to the discussion The love of my life ( Kenneth E Steadham) in the forum In Loving Memory https://alsnewstoday.com/forums/forums/topic/the-love-of-my-life-kenneth-e-steadham/#post-23502 Tue, 07 Feb 2023 20:29:42 -0600 Reply to The love of my life ( Kenneth E Steadham)

Shannon,

I’m so sorry to hear of the loss of your beloved husband. I’m sure that God has him in his hands. My prayers go out to you and your family.

 

]]> 06d8820dd4a415e9a387af9f2bfec606 Matt Ashley became a registered member https://alsnewstoday.com/forums/activity/p/17748/ Sat, 26 Nov 2022 17:28:26 -0600 2