Paula Patriarca
Forum Replies Created
-
I agree that there are too many people for this to be a coincidence. More needs to be done to study this link whether it caused it or activated it is unknown until it is further studied. However, we are all proof that there is some type of link. Currently, there are so many neurologists and scientists studying ALS. I am hopeful that we will be the first generation to survive this disease. My thoughts and prayers are with all of those individuals that are working so hard to help us defeat this.
-
Dagmar,
Could you please share what lifestyle changes and exercises you use effectively to slow down progression along with the Riluzole. My husband and I have been following you since he was diagnosed but it would be help if you could share what you find most effective. Thank you
-
Sylvia,
The same here. My husband and I were hiking long distances and exercising regularly before May of 2021. We both got Covid in November of 2020. In March of 2021, we received the Covid Vaccine, Pfizer. After the vaccines, my husband’s symptoms started. There is no doubt in my mind that Covid and the Covid Vaccine played a role in activating this disease. More needs to be done to investigate this connection as it may help in finding the cure.
-
Dagmar,
Thank you so very much for all the information you provide. You are the reason we continue to navigate this with a positive attitude. Please keep sharing as your ideas help so many families.