Forum Replies Created

  • Mary Kay Polashek

    Member
    June 23, 2022 at 3:03 pm in reply to: Are you celebrating anything special this summer?

    63rd birthday on Flag Day!

    40 years of marriage on June 26th with all four kids and significant others home. Blessing at the Sunday morning Mass.

  • Mary Kay Polashek

    Member
    June 20, 2022 at 2:34 pm in reply to: What is, or has been the biggest adjustment for you in living with ALS?

    My biggest loss is not being able to do most activities so I get bored. I’ve had a feeding tube since Sept 2021 and miss eating and drinking but now it’s the norm for me. My wonderful husband takes incredible care for me and I am blessed.

  • Mary Kay Polashek

    Member
    May 5, 2022 at 7:47 pm in reply to: Teeth and Bulbar ALS

    I too have bit myself at night and during the day when I sneeze. It’s terrible. I tried a mouth guard but it didn’t work for me with all the extra saliva. I now spend my waking and sleeping with a small Norwex cloth between my teeth to stop me from grinding and also to soak up the saliva. With doing this, I no longer bite myself and all my mouths sores have healed up. I’m terrified of going to the dentist and will likely not go anymore.

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