• NJGuy replied to the topic Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS 3 months, 3 weeks ago

    Congratulations David Crellin!  And wish you the best!

    I was also so scared of lumbar puncture when my neuro had suggested, but it was absolutely painless. Here is my experience: There was a nurse who prep me for the procedure, and they first examine the lumbar spinal region on x-ray and see what gap (e.g. L4/L5)  is best, then apply a local anesthesia, and while looking at the screen, push a very fine needle in the gap, and make me lie on side, and collect the CSF (which is coming out on its own, since there is some fluid pressure). Once they collected amount of fluid they needed, they just put a small bandage. During the whole process, I was talking to the nurse and did not at all feel any pain. Need to rest for a few hours lying on back to recover, went back home in about 4hrs.

    In your case it is injecting, other parts of procedure may be almost similar.

    Wish you all the best!


    • Thank you so much for sharing NJGuy!! You have no idea how much it helps to hear other’s experience.

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