Forum Replies Created

  • Pepper de Callier

    Member
    July 16, 2021 at 12:12 pm in reply to: artificial voice/speech equipment

    Thanks so much.  Pepper

  • Pepper de Callier

    Member
    July 2, 2021 at 7:54 am in reply to: Muscle shortening

    Thank you, John.

  • Pepper de Callier

    Member
    June 25, 2021 at 2:11 am in reply to: Do people treat you differently because of ALS?

    Well said, Len!   This is the kind of acceptance and perspective that can bring so much happiness and fulfillment to us.  Thanks so much for sharing this.

  • Pepper de Callier

    Member
    June 24, 2021 at 1:33 am in reply to: Do people treat you differently because of ALS?

    Call me an eternal optimist, but we need to focus more on more positive stuff.  Yes, these things happen to all of us and will continue, but it’s how we react that makes our journey a fulfilled or demoralizing one.  It is our choice to be the master or the slave of our condition.  Face it, we are life warriors.  We live with challenges every day that “they” will never comprehend.  But we do.  This is what I choose to think about.  We know that our eyes become a screen onto which our thoughts are projected.  Think about how proud one feels to be a life warrior and let others see that in us.

  • Pepper de Callier

    Member
    September 15, 2021 at 9:11 am in reply to: Emergency Notification Device

    Thank you, Elaine.  I’ll look into that.  Pepper

  • Pepper de Callier

    Member
    September 15, 2021 at 4:14 am in reply to: Emergency Notification Device

    Thank you, Marianne.  Yes, it was a bit scary, but it taught me that I shouldn’t be going anywhere alone.  Best–Pepper

  • Pepper de Callier

    Member
    July 14, 2021 at 3:33 am in reply to: artificial voice/speech equipment

    Thanks so much!  All of the responses have been very helpful!

  • Pepper de Callier

    Member
    June 21, 2021 at 10:43 am in reply to: Do people treat you differently because of ALS?

    Dear Kathy, I am a pALS, diagnosed about 18 months ago.  My speech is getting pretty bad.  I have customer care people hang up on me when I try to tell them the reason for my calling.  It is an isolating feeling, indeed, but I have something I do every morning that helps me.  When I open the shower door to get in, it’s become automatic that I think about what I am grateful for today.  By doing this, I am not denying my ALS, but I am putting it in perspective.  More often than not, it helps set a more positive mindset for the day.  Someone wiser than I once said that the only thing we have control over in life is our reaction to our circumstances.  This is how I react.  I hope this may give you an idea or two for yourself.  I am learning now, more than ever, the wisdom of living one day at a time.  All the best–Pepper