Forum Replies Created

  • Robert Daniels

    Member
    June 2, 2020 at 2:19 pm in reply to: ALS Awareness Month Spotlight: Susan Gray

    Hi Susan

    I appreciate your spirit, I try to approach my life the same way. Mine began with my left hand in 2015, loss of dexterity, was DX with a strange sounding rare condition. Everything remained the same for two years then right leg and low back issues, neck surgery and a new DX in March 2018. Prior to the back and leg issues I was still an active 5th degree black belt in Japanese Karate with over 25 years of training, a biker and loved golf. Today I am walking very slow with a walker, my speech is difficult to understand and my right hand is beginning to fail but each night I go to bed hoping to wake up to a meaningful treatment to get some part of my old life back. You are right about having the right attitude even though many days it is hard. Let us hope that 2020 is the year for a breakthrough for all of us.

  • Robert Daniels

    Member
    December 3, 2019 at 1:21 pm in reply to: Hope

    NurOwn has shown positive results verified by some of the best Dr.s We need access asap.