Forum Replies Created

  • Robert

    Member
    October 21, 2022 at 7:48 am in reply to: Burning Sensations

    Hello everyone. I used to get burning in front of my ankle’s. It’s gone now, however now I experience a very cold feeling on my ankles, knees and hips. Its weird doctors cannot explain. I am not taking anything for it. Is anyone going through this/

  • Robert

    Member
    July 26, 2022 at 4:57 pm in reply to: Radicava and side effects

    I am going to start radacava next week. I am presently on riluzole. At this point I am willing to try anything. I have been getting worst.

  • Robert

    Member
    June 28, 2022 at 2:43 pm in reply to: Would you seek out Albrioza treatment?

    I did write to Rep Nigel. Yes I would go the Canada. Once I get locations. It’s sad how the FDA can turn a treatment down for ALS but will give e the thumbs up 👍 for pesticides that we eat every day in our fruits and vegetables. Maybe there’s now enough money Involved to fill their pockets. I mean I don’t enjoy thinking of things like this but it just make you wonder.

  • Robert

    Member
    September 21, 2022 at 1:00 pm in reply to: CLENBUTEROL

    Hi Doug, I am little confused. I was directed to take Riluzole twice a day, one hour before or two hours after a meal. You take it with meal. h

    How has it been working for you?