• Just started my husband on Hospice yesterday.  He isn’t close to dying yet, although I don’t know for sure; but we need help and they are there in any way we need.  He refuses any type of life saving options, i.e. feeding tube, oxegyn, etc.  So I get to just watch him die a most unpleasant death.  Fortunately Hospice will be there to make him comfortable, and give me support, when the time comes.

    • Roxanne,

      My father was a lot like your husband. He refused any type of treatment. Heck, he just stopped going to the doctors. We had Hospice service for about a month and a half. They were amazing, absolutely amazing. My heart aches for you. I wish I could offer something that would help. Watching someone you love deteriorate from ALS is horrific. You and your family are in my thoughts.

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