Shelly Roy
Forum Replies Created
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Shelly Roy
MemberDecember 23, 2022 at 7:28 am in reply to: Have you had physical therapy sessions for your ALS?I just started physical therapy sessions and I’m finding PT to be very helpful in keeping my movements a little more fluid. I do my exercises everyday at home and meet with the physical therapist weekly. If nothing else, it makes me feel better to know that I’m actually doing something positive for myself.
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Shelly Roy
MemberDecember 6, 2022 at 4:31 pm in reply to: When did you first hear those dreadful three letters…A….L….S ?A co-worker who taught at the same school was diagnosed just before he retired. His goal had been to play piano in a lounge during his retirement. ALS never allowed that to happen. Forward about 15 years to 1 Sept 2022 and I heard those letters but this time they were directed to me not an acquaintance.
ALS wasn’t even on my radar:Â arthritis, carpal tunnel, a pinched nerve, even stroke were all possibilities until I saw a neuromuscular specialist. I recognize I’m just beginning my journey but it’s been a horrible roller coaster ride. I’m thankful for supportive family and friends as well as compassionate doctors.
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Shelly Roy
MemberDecember 27, 2022 at 5:50 pm in reply to: Have you had physical therapy sessions for your ALS?Thank you, Dagmar. I’ve been making progress and I’m really enjoying my PT sessions and the exercises. There’s so little I have control over with ALS that it’s nice to be able to do something that helps me.