[Tomasz Boski]

hmmm, I am on TUDCA for 3 years……..not so many benefits

[Tomasz Boski]

John s

As aretired now academic researchar I can see that you have never been involved in any drug research nor have you ever tried to raise money for it (if not ALSTDI or one of the Associations, its impossible). If I am wrong, kindly say how many scientific papers you have published and their references.Complaining about the RCH4 charity who give a lot and ask for nothing is odd. You are hurting other PALS by undermining the future of the charity. You cannot deny that is what you are doing even if you mean well and its unintended.

You suggested that the charity get off the pot. You should do the same, stop criticising and ask them for help if you are a PALS.

Thank you

[Tomasz Boski]

Diana said “The same kind of information, including results from trials, should made readily available from the developers of RCH4.   The fact that it is not raises grave doubts in my mind about the product’s efficacy and safety for use.”

Actually Diana, they do. See  https://www.als-new-drug.com/rch4-clinical-data

I have been on it now for more than three years and it really helped

[Tomasz Boski]

Good morningDagmar,

I do not know what is your profession, I know however  that through 4 decades of my research career I reviewed and refused  tens of papers for flawed methodology. I never saw a scientific paper  that discusses other topics (like in review 51 by ALS untangled party) but experimental data, their discussion and conclusions. Several of my manuscripts were refused for the insufficient evidence to support conclusions and it was perfectly a part of the research routine. Please be so kind and don’t remind me what ethical behavior of a academic researcher should be . Thank you for maintaining your impartiality.

Karl – thank you for your friendly remarks.

[Tomasz Boski]

This review/article is methodologically flawed and based on completely insufficient data which Bedlack received from  the 3rd party. It reads like more like act of personal vengeance. After labelling rch4 as SCAM , attempted manipulation of public voting in ALSu ranking list, it is another attempt to bury it instead of promoting a fast, fair and scientifically sound trial.

 

[Tomasz Boski]

In 2017 I followed webinars by R.Bedlack. Flashy presentations about reversals and exotic substances. Nothing came out, just more webinars.

 

[Tomasz Boski]

autoimmune conditions are very common among pals. ALS itself, all indicates, is an autoimmune condition. Myself I have psoriasis, pollen allergy and gluten sensible bowel.

PHYSICAL EXERCISE  is very beneficial but in excess is very harmful (my own experience). What is an excess varies from person to person and depends on your state.

[Tomasz Boski]

Dear Dagmar,

Maybe riluzole is effective for one of 25 variants of als/mnd. Not my case. If one is trained to carry on quantitative observations then plotting the progresion trend is easy. In my case Riluzole intake did not change the slope of the line.

I agree that laughing is great therapy. I practice it every day.

[Tomasz Boski]

Dear Dagmar,

I have a similar experience as Karl. Riluzole completely useless, without any benefit. It may eliminate all glutamate but if does not stop/decelerate progression it is wasting of money.

[Tomasz Boski]

As AlS is a poorly defined group of diseases the efficacy of RCH4 varies from nil to stopping totally the progression . It is verified by comparing the extrapolated pre-treatment trend  with the progression trend after the treatment initiation. In my case the deceleration is about 60-50%.